Rare Disease Day
February 29, 2020
Why it’s so important to bring awareness to Rare Diseases, and not just for Rare Disease Day.
Her Happy Place
February 24, 2020
Took awhile to heal from her g-tube surgery, but she is finally up
Treatment 21 & 17
February 19, 2020
I hate treatment day soo much, it is stressful, it’s long, it makes Josef sick.
100 Days of School
February 18, 2020
My little trouper! Her sweet classmates helped her make glasses to celebrate the
Hard Day for our Claire Bear
February 16, 2020
We just knew something wasn’t right, and for the first time in 9 months Claire
Valentines Dance-A-Thon
February 14, 2020
We have such an incredible support system at Claire’s school.
World Symposium
February 12, 2020
For the past 16 years there has been a conference held in Orlando
#CranesforClaire
February 8, 2020
In December of last year, we were approached by a stranger
Meet Madden
February 3, 2020
We were so disheartened to hear about another diagnosis.
Finding a Balance
February 2, 2020
It’s been a hard week, and when I think of the 20+ appointment