Our goal is to raise
$250k for treatment and a cure.

$0

72%

Love from Mark and Terri

Batten Disease is an utterly devastating condition, yet it is widely unheard of… and we want to change that. You will meet our family, learn more about the condition, you will also be able to find out all of the different ways you can help us. Thank you visiting and we hope you are inspired to join us and be part of our journey.

Disease Awareness

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Latest News

New Blog Changes
October 2020

We have exciting news. We would like to take this opportunity to announce that

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A hard anniversary
April 30, 2020

A year ago today, a day I thought I would never be able to get through, our

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Some special moments
April 24, 2020

Caught some special moments this week. Claire rocking her baby close to her.

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We are always grateful to everyone who shares our story and helps raise awareness for Battens Disease. We want to ensure that other families affected have a place to turn for support and know that there is resources available to them.

If you think you may have be able to help us in any way please contact us here.