A year ago today, a day I thought I would never be able to get through, our brave Little fighter had a port placed in her brain. Even though the surgery was less then hour, I was never more afraid of anything in my life.
She woke up a little groggy, but smiled as soon as we walked in the room, the relief we felt knowing she was ok and one step closer to treatment was immense. Then the reality of knowing in a few short weeks we would be doing it again with my two year old son hit me.
So many mixed emotions. We thought this would keep her running around, talking to us, eating an entire pizza to herself, but that wasn’t the case. Batten continues to steal a little part of her, much much slower then without treatment, but not stopping it.
Some days we are mad, some days we are sad and some days we stay in the moment and appreciate everything she can do.
Regardless of our feelings, she will only feel love and support and happiness, and we will do whatever we have to, to make that a priority.