Love from Mark and Terri
Batten Disease is an utterly devastating condition, yet it is widely unheard of… and we want to change that. You will meet our family, learn more about the condition, you will also be able to find out all of the different ways you can help us. Thank you visiting and we hope you are inspired to join us and be part of our journey.
That smile, even with what she must face everyday. She is so brave.