We got a trampoline
June 30, 2019
When you are dealing with a neurodegenerative disease, its so important to do everything you can to
Infusion four is complete
June 27, 2019
Infusion #4 done! This one didn’t go quite as smoothly ☹️, a combination of Claire moving, and the needle not being
Josef undergoes port surgery
June 17, 2019
There is something so incredibly hard bringing a perfectly healthy kid to a hospital. Josef went into neurosurgery to
Claire’s Third Infusion
June 13, 2019
Infusion #3 done! I know it’s too soon to start seeing results, but I swear we are starting to see the sparkle in her eye that we
Welcome Ace
June 4, 2019
Both Claire and Josef light up whenever they see a cat, they have been wanting one for some time. The only problem is Mark
Josef turns 2
June 1, 2019
Happy 2nd Birthday Josef. The last year has brought so many changes, you went from crawling to running and climbing