A hard anniversary
April 30, 2020
A year ago today, a day I thought I would never be able to get through, our
Some special moments
April 24, 2020
Caught some special moments this week. Claire rocking her baby close to her.
Our new normal
April 17, 2020
Yesterday is a quiet day at our house, treatment takes alot our of the kids.
Nana’s Birthday
April 15, 2020
25 and 21 happened on a special day, Nana’s birthday!!
Finding Gratitude
April 12, 2020
For my fellow caregivers/Batten parents. I have been struggling with comparing
Progress
April 10, 2020
We were so worried without her weekly therapy’s now that everything cancelled,
This week in pictures
April 4, 2020
Our lives have changed so much during Covid and I know many parents can
Treatment during Covid
April 1, 2020
#24 and #21 are complete. So much anxiety the week of treatment,