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Treatment 16 & 12
December 11, 2019

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Almost wasn’t sure this treatment was ago. The hospital has a protocol to not administer the enzyme unless the kids undergo a health check, and everything is ok. Claire has had a fever the past two days and we were hoping that it would be gone by now, but unfortunately it has not. Thankfully our team decided to go ahead, we knew she had a cold and nothing serious was going on, and the best thing for her is to continue to receive treatment on time.

It was a sleepy grey day, but completely uneventful. Looks like we found the perfect concoction of meds for Josef to avoid any nausea. The new meds, with the new head wrap makes for a quicker day and we were home before 5. Hoping that we this continues, only one more for the rest of the year!

Also keeping our fingers crossed Claire’s fever goes away. She had the best week, four days of school, a PT session, 3 Neuromovement classes, Josef’s daycare Christmas party, dinner for her moms birthday and a friends birthday party, super busy week but she loved it all.

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