Today was a big day…..for the first time we brought both kids for treatment at the same time.
It takes both of us to keep one still as they get accessed, so we weren’t sure how we were going to be in two places at once.
With the help of some great nurses, we got it done and had another successful infusion.
Thankfully Marks parents came down to help cuddle and keep them entertained for the 8 hour day.
For the first time Claire ran around the treatment room, she has become more steady on her feet and we feel it really is because of the enzymes she is receiving. It helps us keep going and having faith we are doing the right thing.
Now off to the cottage for two weeks!