Happy Birthday Claire!
March 27, 2020
Today we wished this very special girl a Happy 5th Birthday. Covid put a damper
He Finally did it!
March 14, 2020
We all know that you might find Waldo before you find Marks hairline!
A Message From Mark
March 13, 2020
As you all know, Terri is always the one uploading posts. I think
CORD Conference
March 9, 2020
Headed to Ottawa for two days, I was in a full room discussing rare disease and
PT Day
March 6, 2020
Up early doing PT this morning, the infusions really give her that burst of
TBT
March 5, 2020
This memory popped up today, a reminder of when we didn’t have a care in the world,
A Better Treatment Day
March 4, 2020
Our little man is having a better day, isn’t feeling as anxious, didn’t need me
Blown Away!
March 3, 2020
This just happened!!! We are honestly in shock, Claire’s school came together