Christmas Has Arrived!
December 25, 2019

Christmas was mentally exhausting. I’m sure most moms can agree with that.
Last Infusion of 2019!
December 23, 2019

Can’t believe we have been doing this for nine months. We get to start the week with treatment
Tis the Season for Christmas Parties
December 22, 2019

That smile, even with what she must face everyday. She is so brave.
Not so Rare
December 20, 2019

We spent nine months fighting for a diagnosis, and I thought that it was a lifetime.
Glow Toronto
December 19, 2019

Thank you to Make A Wish for giving us tickets to Glow Toronto
Memories
December 18, 2019

Sometimes memories take your breath away……Our first Christmas after diagnoses is not something we are looking forward to.
A tough few weeks…….
December 17, 2019

After another visit to urgent care last night, this picture my sister sent me is an accurate picture of how I am feeling.
The Realty Boutique’s Annual Holiday Skate
December 16, 2019

We were honored to be chosen as this year’s charity at The Realty Boutique’s Annual Holiday Skate.
Back to the Hospital we Go
December 13-15, 2019

We are really struggling with this cold. Claire is on three types of seizure meds
Treatment 16 & 12
December 11, 2019

Almost wasn’t sure this treatment was ago. The hospital has a protocol to not administer the enzyme unless