As you all know, Terri is always the one uploading posts. I think it is finally time to share how much Terri means to not just me, but all 3 of us. The care and love she gives to ensure we all make it through the good and bad days is unmeasurable.
Terri is an amazing and loving wife, mother and rock for Claire, Josef and myself. She fights continuously to make sure Claire and Josef have the best care and the best chance to beat Battens CLN2. The appointments, treatment days, conferences and meetings, she presses on no matter how difficult. Terri is also dedicated to raise much needed awareness and difference in the rare disease world. We as a family would not be where we are today without her incredible effort.
She is a remarkable wife, mother and person!!
We love you so much.
Mark, Claire and Josef
